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Vaccine on or off treatment : Will ask MD but - CLL Support

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Offer Details: If off ibrutinib for a week do to a procedure how could this affect vaccine response if it happens shortly before, shortly after, or in between 1st and 2nd vaccine. Read more about Ibrutinib; Reply Like (1) Save post Report. 4 Replies. oldest • newest. cllady01 Volunteer. That is a question I had not thought about. Please let us know what your DR. says. It will most likely be a See more ...

What to take to discontinue Prolia safely and - Bone

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Offer Details: Re women going off Prolia: I suspect in years to come there will be an increasing number of women discontinuing Prolia, not only because of the side effects which can become worse the longer one is on it, but also because they HAVE to stop. A few of the papers I've read have said that it shouldn't be taken for longer than 5 years, the equivalent recommendation for bisphosphonates, because of See more ...

Off: I am getting off this site. All these - AF Association

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Offer Details: I am getting off this site. All these abbreviations are making me crazy! Reply Like (1) Save post Report. 12 Replies. oldest • newest. pottypete1. Sorry to hear this you obviously came here for a reason. Maybe the following will help: EP - Electrophysiologist, a cardiologist specialising in heart rhythms. PAF- Paroxsysmal (ie occasional) Atrial Fibrillation . PVI - Pulmonary Vein Isolation See more ...

Ropinirole Withdrawal or Something Else? - Restless Legs

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Offer Details: I came off Fentanyl 70 and it took me 18 months to finally get it down to zero. With a lot of holidays from tapering down-- I like to call them plateaus!!😊 I used clonidine and valium just for the final week. But there are other medications that can also help with rhat final spell. The main thing is to go down as slowly as possible, and by as small doses as possible , let your body get used See more ...

Quit Mirapex after 16 years.Cold t - Restless Legs

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Offer Details: Taking opiates to get off the Pramipexole is the only way, doing it by yourself will not work, the withdrawals will be horrendous. But staying on the Pramipexole and having to keep adding to it will also not do your health any good. A doctor is willing to keep upping your dose, but not help with you getting off it..! They are putting your health more at risk, then by giving you opiates. If you See more ...

Stopping Carbidopa-Levadopa abruptly, - Parkinson's

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Offer Details: I go on-and-off Sinemet all the time and never noticed a problem and like your husband, I feel the same whether I"m on or off the drug, but my experience may not be relevant to anyone else's case. Reply (5) Report. 1rocketman in reply to MBAnderson. Thanks for your reply! It’s encouraging to hear that you also experience no side affects when you change your dose. I would love nothing more See more ...

Coronavirus & Methotrexate : I do hope this isn’t too

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Offer Details: Hi. I came off MTX 2 weeks ago as I had a UTI and had to take a course of antibiotics. Decided to stay off them as I caught a bad cough; I’m still taking Hydroxychloroquine. I’ve now got a temperature and feeling grotty, aching and sweaty. Am self isolating but also a bit worried that maybe I made the wrong decision and that I might get a chest infection or a flare . Am waiting for See more ...

Question on Bicalutamide Withdrawal - Advanced Prostate

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Offer Details: There is evidence that when you are on Lupron and Bicalutamide for metastatic prostate cancer and your PSA starts rising, stopping Bicalutamide may, in some cases, lead to drop in PSA. In my case, I See more ...

Coming off bisoprolol: Coming off - British Heart Fou

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Offer Details: I’ve recently been taken off Bisoprolol by the cardiologist to bring my BP up, which it has (10%). It is always a bit low, but at times of stress it drops through the floor (well into the 50s). However it hasn’t made any difference to daily tiredness, actually worse now. I think that the higher BP and heart rate means I’m less good at rationing my energy through the morning, and still cr See more ...

I'm about to start using a conveen, advice - PSP

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Offer Details: Hi Gavin, my husband's convenes have never come off with the strength of flow but if there is a kink in the tube, either where it joins the convene or the bag, it can back flow and urine comes out of the top. I have to make sure there is a clear way through. At first, several convenes did come off but mainly because they weren't put on correctly. I don't let carers put them on now as if I do See more ...

Exercise and 'Days Off'?: I go to - British Lung Foun

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Offer Details: It seems my'performance' declines unless I take a day or two off. I have an Fev-1 of 22% and am still able to function -- but wonder -- besides normal activities -- if I wouldn't be better off to go to a 4 day program or alternate days etc. Just looking for thoughts from others. Much appreciated. Reply Like (0) Save post Report. 7 Replies. oldest • newest. Bkin. I would try for alternate See more ...

Coming off Clopidogrel : Coming off - British Heart Fou

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Offer Details: Coming off clopidogrel. Hi I’ve just come off clopidogrel just over a week ago, I had HA with stent fitted in the LAD 12 months ago, been back into hospital twice in Feb as I started getting pain in chest, first time they thought it may be unstable angina, and put it down to HA last year, second time I was admitted I was given another angiogram they found I have ’arterial coronary spasm See more ...

Lights on or off: Before I start I'm so - Anxiety and

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Offer Details: Lights on or off. Wild_N • • 6 Replies. Before I start I'm so glad I found this platform, I beginning to see everyone and the world as my enermy. At times I don't want to wake up but I do coz I'm a parent. At times I don't want to breathe but I have to smile at my children so they see nothing wrong, wrong in such a way that all is well mommy's got this Been good or being yourself is the See more ...

Coming off Amiodarone: I have been off this - AF

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Offer Details: Lost my taste, horrific nightmares (I don’t normally dream) and real problems sleeping. Heart rate eventually normalised. After 2.5 months paid to see an EP who took me off it and cut my bisoprolol in half (now 5mg). Still having nightmares and trouble sleeping but no AF or Flutter. Been a couple of months off it so it’s probably still in See more ...

Bake off or Bake OFF! : Just wondered what - Weight

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Offer Details: Just wondered what members make of the hype around Bake Off and the Great British Menu. I try to avoid TV as much as possible but caught the end of GBM and there is a load of hype around Bake Off around at the moment. Friends of mine who are scrupulously healthy are forever going on about something called a Ruby Tandoh cake they've made. 'Oh, and I've out a couple of pounds on!' It seems that See more ...

Off topic: I wonder : What will the very first thing - NRAS

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Offer Details: Cuddles with my children and all my grandchildren, re-booking holidays, taking off in the caravan, meeting up with friends. I might even give mingling a go. Reply (3) Report. Blueskysunshine. I’d like to see my family and friends and be able to hug them. Cuddle my nearly one year old granddaughter. Do simple things like having a cup of tea in someone’s house, or maybe a glass of something See more ...

Tapering down off Prednisolone: Hi everyone, not - PMRGCAuk

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Offer Details: Tapering down off Prednisolone. Dappa • • 34 Replies. Hi everyone, not posted in awhile. Hope everyone is doing okay. I'm at present on 4mgs tapering down and eventually hoping to come off. Had my adrenal glands checked and they are working normally. which was great news. Just wondering with this tapering if anyone else feels so fatigued and depressed. I can change with how I am not just See more ...

Bisoprolol and weaning it off: Hi Everyone. I - AF

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Offer Details: I was told to come off 2.5 mgs and when I did I had a terrible time. I called our on call doctor as it was at the weekend and he said to taper myself off it as described above. My EP wants me to take a 1.5mg dose with my Flecanide but I refuse every time it comes up. Life wouldn't be worth living taking that awful drug into my system. I find it unbelievable that consultants expect you to put See more ...

Warfarin/blood thinners and Covid 19 - British Heart

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Offer Details: Every so slightly off topic, but I take clopidogrel having had a second stent 5 weeks ago, and I had my flu jab a few days ago. No bleeding. Reply (1) Report. Greenfarm. I am in the same position as you it seems - permanent AF, three leaky heart valves and am on Epixaban. I shall be interested to know if anyone has had any information from their GP with regard to the vaccine. I’m 78 so am See more ...

Do COPD sufferers have to wear masks? - British Lung Foun

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Offer Details: You can then print it off or keep on your phone to show if needed. The BLF are working with the government to clarify how people with lung disease can prove their exemption. Reply (2) Report. QuietLad in reply to Fircone. Thanks. Reply (0) Report. Robin67. I can't wear a mask so i purchased a few face shields from amazon . Reply (1) Report. QuietLad in reply to Robin67. Thanks. Reply (0 See more ...

motor fluctuations, or "off" times - Parkinson's Movement

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Offer Details: In the new "Ask the MD" video, discuss motor fluctuations, or "off" times -- periods when Parkinson's symptoms return despite medication use. Explain how and why "off" times occur, options for medication management, and a few of the therapies in development to avoid these fluctuations. See more ...

Swelling: On Jan. 11 I will have been off - PMRGCAuk

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Offer Details: On Jan. 11 I will have been off prednisone for two months. I know I have osteoarthritis but am now experiencing swelling in the wrist and on my knuckle. I have felt pretty good apart from fatigue and the aching going from sitting to standing up. However, I do not hurt when sleeping at night. Do you think this is the osteo acting up? My Rhemy dismissed me as a patient when I had finished the See more ...

has anyone heard off or used milk this - British Liver

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Offer Details: has anyone heard off or used milk thistle capsules,if so are they any benefit to someone wiv ciarosis. paulivicky • • 20 Replies. Read more about Milk thistle; Reply Like (0) Save post Report. 20 Replies. oldest • newest. Hidden. Not sure what if any the benefits are but I have been using them for a few months, I reckon I feel better for taking them although my doctor would not say See more ...

Off Mirapex: Hello everyone, I am now - Restless Legs

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Offer Details: Well done for getting off mirapex- things will settle and you will feel better soon. Reply (3) Report. Moonpen in reply to Joolsg. Thank you for the support. I am taking magnesium and other supplements and my ferritin level is 400. I’m hoping it will ease soon or at least before I lose my mind. Reply (2) Report See more ...

Gabapentin with Ropinirole: I have been - Restless Legs

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Offer Details: I will definitely try backing off of the Ropinirole by quarter pills, until I'm only taking the ER. I don't think those can be cut, but maybe there's a lower dose than 2mg available. Time is all we have, where RLS is involved! Sleep well! My friend! Reply (2) Report. Franklin123. Hi - interested to know what Ropin ER is? I am gradually raising my iron levels - thats ferritin. It seems the See more ...

Off topic: I spend time on here looking at the - PMRGCAuk

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Offer Details: Some time ago, there was a change where the off-topic post, like this one, seem to be banned. As we know our condition takes a lot of management and needs help and advice on our conditions as well as being able to laugh at ourselves. The later is no longer wanted here, yet there are still posts containing off topic photos, that are allowed, and other people get reprimanded for off-topic posts. See more ...

Coming off PPIs for endoscopy - Scleroderma & Ray

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Offer Details: However, I suspect I will get much more notice of the next appointment and will have to come off the esomeprazole for 2 weeks. At present I take 40mg a day at the same time and almost without fail, my reflux starts half an hour or so before I take it. In the past before I was changed from lansoprazole to esomeprazole I was waking up many nights with awful reflux and fluid in the lungs (Despite See more ...

Weaning off Pramipexole : I have just - Parkinson's

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Offer Details: For off times that were increasing I went natural.grapefruit juice and green tea extract. Both knocked out enzymes that hampered levodopa absorption and extended my on time considerably. While these will vary in effectiveness from person to person they worked for me. You must consult your doctor before trying either of these, or else tread carefully. Take 1/2 hrs before levodopa source. And See more ...

Off during excersize : Today, at 7:3 - Parkinson's Movement

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Offer Details: Off during excersize : Today, at 7:3 - Parkinson's Movement. Parkinson's Movement. 18,209 members • 18,519 posts. Join Write. Home; About; Posts; Members; Off during excersize . Bdekel • • 19 Replies. Today, at 7:30, I was at the physiotherapist who gave me exercises of balance and strength. After a few minutes I went off and felt weak and nauseous and could not go on. Has anyone See more ...

Fobbed off or genuine answer??: Morning all. So, went

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Offer Details: Off topic Content on HealthUnlocked does not replace the relationship between you and doctors or other healthcare professionals nor the advice you receive from them. Never delay seeking advice or dialling emergency services because of something that you have read on HealthUnlocked. See more ...

withdrawal from pizotifen: Hi has - National Migraine

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Offer Details: Yes, my main factor to come off them is weight gain and unbearable tiredness I’ve had pretty much for the 3 years plus I’ve been on them as have been too scared to try the other ones ! And also the withdrawal problems. That is a good idea to be gentle with self and also look after gut health. I’m on a high strength supplement for migraines but when I last tried that was not enough to See more ...

Best time to take Ramipril morning or - High Blood

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Offer Details: The headaches seem to have eased off thank goodness. I've been reading that ACE inhibitors are best taken at night, especially Ramipril, for them to work more efficiently, as they help with non-dipping ? I can relate to that as I hate going to bed it's when I get my panic attacks most and have problems getting to sleep due to anxiety, so my BP is probably raised more then. Yet I was told by my See more ...

Off topic - Parents: That moment when your Mum tells - NRAS

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Offer Details: Off topic - Parents. Deeb2908 • • 19 Replies. That moment when your Mum tells you about a cold caller builder chap turning up offering to do work on porch and guttering. They allowed him to convince them to let him in the house and kept talking to them till they agreed a price. A/thank god ok. B/ they slept badly and when he turned up for money and start work they cancelled him as realised See more ...

Sjogrens or Fobbed-off-by-rheumatologist syndrome? - LUPUS UK

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Offer Details: Sjogrens or Fobbed-off-by-rheumatologist syndrome? Polly2Cats • • 8 Replies. I had an unexpected rheumatologist appt today (long story). Anyway I saw a different guy - the clinical lead. I was hopeful n left feeling quite positive but on reflection I'm not so sure He didn't have my full notes but reviewed bloods and said he THINKS I have sjogrens. He's not sure coz I've not had saliva See more ...

Steroid withdrawal: I stopped using my Breo inhaler

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Offer Details: But inhaled, topical and one off steroid injections can all impact on the HPA. I’m thinking that sudden cessation might cause some rebound, much like PPIs for instance, therefore wean off if necessary. If you’ve been reliant on inhalers, then you’re going to notice a sudden absence surely, (even if adrenals are in full swing). Which pain killers? Reply (2) Report. Yellowbluebell See more ...

Transitioning off meds : I realized - Anxiety and Depre

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Offer Details: I realized last week that I’ve hit the withdrawal portion of transitioning off my meds. I have taken Paxil for 12 years after frequent panic attacks and eventual agoraphobia we’re dramatically effecting my quality of life. At one point I was on 50mg. With a doctors. Help I began to taper and have been completely off for approx 3 weeks. The withdrawal symptoms are starting to hit me See more ...

To mask or not to mask: Off piste and Covid-19 re

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Offer Details: So I think ski resorts would spread the virus well as it would not die off much outside at all.. that said i do raise it's the crowds and direct contact thru droplets or direct air transmission. Just maybe there is a lot on the surface or remaining in the air in this transmission as well? I still don not know.but it still fits. Reply (0) Report. Constance13 in reply to Cross-stitcher. I See more ...

Coming off Champix - and advice/feedback - Quit Support

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Offer Details: Coming off Champix - and advice/feedback . Mazzie14 5 MONTH WINNER • • 7 Replies. Well this is the longest I have ever managed to stay off nicotine and I'm happy to report easier breathing, concentration at work getting better, clearer skin, no yellow stains on fingers and of course not smelling like an ashtray. My question is I have two weeks left on champix but am starting to worry See more ...

Nausea and prednisone: I have been off methotrexate

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Offer Details: I have been off methotrexate for 7 weeks now due to waves of nausea. I am transitioning 1mg/month of prednisone and 2 days ago came down to 9mg then back to 10 today and 9 again tomorrow. Problem is that today the waves of nausea are back. Is this now pred? I have been free of nausea from mtx for over a week until today. See more ...

Off of xtandi and PSA is low - Advanced Prostate

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Offer Details: But by July this year, Psa was up 100 times to 30, and I had two more Lu177 doses and maybe Xtandi effect had worn off, ie, it failed after 15months. Then the PsMa scans began showing bone mets with very low "PsMa avidity" which means that having more than 6 doses of Lu177 was not going to give me a net benefit. Side effects of Xtandi did not seem to occur for me and that may be because I See more ...

GCA symptoms - continuous or on/off?: Hi, I'm still

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Offer Details: GCA symptoms - continuous or on/off? Purpletop • • 9 Replies. Hi, I'm still trying to get to the bottom of my symptoms via-a-vis GCA. For the past few days Ive been having pain in my left temple, in my left jaw, under my left ear and last night pain on my forehead (the latter accompanied by some sensitivity to touch and slight vertical swelling above my left eyebrow). I could rationalise See more ...

On and off sleeping : Does anyone get on and - Anxiety

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Offer Details: Does anyone get on and off sleeping at night I get seven or eight hours a night but not the full 7/8hours Sometimes I get four hours sleep for and get up for an hour and another four hours sleep sometimes three hours get up for 20 minutes and sleep for three hours and get up for 20 minutes and sleep for two hours but I always have a shit day sleeping like this if I get a full 7/8hours it would See more ...

Condom keeps rolling up.: So I used a Durex condom - BASHH

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Offer Details: Condoms coming off, or splitting is usually because it's the wrong fit. If the standard ones feel a little lose, then a closer fit (Durex Close Fit, Pasante Trim, Mates Conform) may be more comfortable. A snug fitting condom can increase sensation. If a condom is too tight, then a larger size may be appropriate. Some people find the band at the bottom can be a bit tight and uncomfortable. It's See more ...

Time off: Hello, I’ll like to know more - Parkinson's

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Offer Details: We are doing a research in a care home which shows thst most patients have too many off periods” Reply (2) Report. beauxreflets in reply to ppvanruit. In my experience the 'off-time' varies from day to day. That said, I also believe that the gut activity & inactivity plays a key role, and a varied diet with fruit, green vegetable fibre; plus staying mobile with walking exercise helps to See more ...

Ibrance Doses: Is anyone on or been on - SHARE

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Offer Details: After starting, and persevering with, the higher doses I eventually had to settle on the 75mg Ibrance dose because of low neutrophils. I have scrapped in most months with 3 weeks on/1 week off and once or twice with two weeks off. Besides the low neutrophils issue the major difference on the lower dose was the fatigue was far more bearable. I See more ...

Weaning off Flecainide: Hi all, I am new to - AF

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Offer Details: After I was off flecainide for a year I weaned off of the bystolic. I have been over a year medication free, but I still have a lot of pvc's. I see an EP now and he is talking about implanting a loop monitor in my chest to capture more info and go from there. I'm also almost to menopause, so those hormone fluctuations don't help. Reply (0) Report. TerriMo. I have been flecainide free for over See more ...

wean off Medrol for adrenal fatigue?: I have a - Thyroid UK

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Offer Details: He recommends tailing off after 8 weeks but restarting if the patient looses ground. Dr P loves Nutri Glandulars and has taken them himself for many years and advised me the will take them forever. Have you been tested for chronic viral, fungal, & parasite infections or immune response inflammation.? .. The big one is Candida but Borrelia Burgdorferi, Chlamydiae Pnemoniae, Helicobacter Pylori See more ...

[Off-topic] Coffee or tea? The answer might be

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Offer Details: [Off-topic] Coffee or tea? The answer might be in your genes. helvella Administrator • • 21 Replies. I glanced at this article earlier and would probably have ignored it. Until I saw a word which is so very specifically important in the context of thyroid! It just might be slightly interesting! Coffee or tea? The answer might be in your genes. Choice of drink linked to how we perceive See more ...

Don't read - off topic - maybe: I was interested in

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Offer Details: Don't read - off topic - maybe. Harbel • • 15 Replies. I was interested in the recent 'political' discussion on here but did not comment, not because I was not interested but because I was more interested in seeing it develop. So the question I have is what makes a 'community' a community? Here's my thoughts. I live in a community and there are many I do not know and don't interrelate with See more ...

Running Off Road - App or website?: Can anyone - Couch

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Offer Details: Running Off Road - App or website? fitnfiftyish Graduate • • 14 Replies. Can anyone help me with an App or website that I can use to plan running routes off road? I live near the New Forest which is a vast area I'd like to explore but I have a terrible sense of direction and don't want to get hopelessly lost! Also, I will be going out with Hubby and want to ensure Domestic Bliss is See more ...

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